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Archive for November, 2010

Is a Patient Advocate or Navigator a Qualified Medical Expense for Patients?

November 30, 2010 2 comments

In the process of writing about Health Savings Accounts (HSAs) and Flexible Spending Accounts (FSA) I began looking at what constituted a “qualified medical expense,” which is the list of the products and services the IRS lets us pay for tax-free.  They are those expenses that we can either claim on our taxes, or pay for through the use of an HSA, MSA or FSA. (What would the IRS ever do without acronyms?  But I digress…)

After looking at the list of expenses, I began to wonder whether a patient / taxpayer who hires and pays for a health or patient advocate can deduct that expense from their taxes or account?  Are we, as advocates who improve their healthcare experiences, deductible expenses?

So I went straight to the IRS horses to see what would come from their mouths… and what came from their mouths were big, loud question marks. They don’t know.  Advocates might be a deduction.  Or they might not.

Frustratingly, the process to figure out an answer requires people willing to test the system, at their own expense, which culminates in a “ruling.”  And even then, when there is a ruling, the answers might change.  (Is this a great country, or what?)

The best way to explain this is to use a metaphor – a parallel situation that resulted in a ruling.  Acupuncture.

Years ago, patients began to deduct the cost of acupuncture from their taxes. Once in awhile, one of those patients got audited.  For the first dozen or hundred or thousand (who knows?) the deduction was not allowed because there was no “ruling.” After awhile, there were enough people who fought for the deduction (paying their CPAs or lawyers to do so) that the IRS finally came up with said-ruling that said, “OK – acupuncture is now included on the list of qualified medical expenses (AKA deductions.)”

So, a couple of notes:

The CPAs and lawyers who successfully got acupuncture reviewed did so by showing evidence that acupuncture has a medical benefit. (ha!  If your doctor doesn’t believe in the value of acupuncture, you can tell him it must work – because the IRS says so!)  Our patient advocacy parallel would be that we need to show that patient advocates provide a medical benefit.

Individuals can ask their CPAs and lawyers to ask the IRS for a “private letter ruling.” That would mean that, before the patient deducts something, he asks the IRS to rule on it.  (I thought about doing this on behalf of AdvoConnection’s member advocates, however  IRS Guy told me it has to be done by individuals, on a case-by-case basis, and cannot be done on behalf of an organization’s members.)

I reviewed the publications put out by the IRS and found a few parallel expenses that are allowed.  From IRS publication 502, I see Christian Science Practitioners (who, like advocates, are not licensed), Nursing Services (these services also do not require a licensed nurse, but can provide everything from true medical services to washing and grooming) to (you’ll love this) guide dogs.  When I asked IRS Guy about guide dogs, he said they are deductible because they assist patients who are blind to get the care they need.  Honestly, of all the goods and services on that entire list, that is the best parallel for health and patient advocates – guide dogs. (In my own humble opinion.)

It seems clear that in order to become a bona fide tax deduction, a few things are going to have to happen.

1.  Patients will need to begin deducting advocate services in order to test the system.

2.  Some patients, early adopters, are going to end up paying tax and penalties for their advocacy services because no ruling will yet exist.

3.  Those patients should be able to find a CPA or lawyer to help them fight the extra tax and penalty by showing the parallel services that already exist on the allowable deductibles list, and using stats that show that patient advocates do improve a patient’s medical care.

4.  Eventually it seems like advocate services will be able to be deducted – but (like everything else) it will take awhile.

So — that big disclaimer! — I’m not an attorney, nor am I a CPA… but it’s a fair question that deserves more review, plus brave patients and caregivers who are willing to be the deductions guinea pigs by claiming these very important and necessary medical services patients’ advocates provide.

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FOR PATIENTSFOR ADVOCATES |
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Why Can’t Patients Be Their Own Advocates?

November 24, 2010 2 comments

Imagine… you suffer chest pains and are swept off to the ER. The pain meds leave you too groggy to make good decisions. Who will help you?

Or… difficult symptoms result in a diagnosis that leaves you stunned. You leave the doctor’s office remembering very little of what you’ve been told. Now you aren’t even sure what to do next.

Or… you’ve begun to find it confusing to keep track of all your medications. You’re concerned you’ll make a mistake. Which ones are you supposed to take with food?  Or on an empty stomach?  What about having that glass of wine at dinner – will it affect the medicines you are taking?

Next week you’ll be admitted to the hospital for knee surgery.  You have friends who have acquired infections from surgeries – one even died.  You can’t advocate for yourself when you’re drugged and in pain… who will sit by your bedside to keep you safe?

Your loved ones live too far away to be much help.  Sometimes you just need a ride to an appointment, or someone to run to the pharmacy to pick up your prescription.

These are just a few of many scenarios that require us to find some assistance to be sure we get the best care and stay safe.  Whether you have a debilitating disease, a new diagnosis, or you just feel so lousy that you can’t think straight – it’s time to call in a patient advocate to help you.

New patient advocates often find themselves having to explain what they can do to help a patient that a patient or caregiver can’t handle him or herself.  Depending on the circumstances, having a patient advocate by your side can actually make – or break – your ability to heal, or even just cope.

Can you think of other scenarios that require a professional private patient advocate?  Why not share them in the comments!

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FOR PATIENTSFOR ADVOCATES |

Dear Nurses, We Are Here to Help

November 19, 2010 1 comment

For the second time in just a few days, I’ve learned from an AdvoConnection advocate member that a nurse has become defensive and territorial in reaction to his choice of career.

Now, please know that I’m not dogging on all nurses. Not all all. Instead I’m looking at this as an opportunity to clarify – for everyone’s benefit, not just nurses’.

Last week I answered the question, “Does a patient advocate have to be a nurse?”  The question came in response to an experience where nurses had actually looked down their noses at another advocate, a non-nurse, suggesting she did not have the qualifications to be a patient advocate.  My answer is no.  All nurses are advocates, but not all patient advocates need to be nurses.

This time it’s very different, but no less upsetting to the person who was on the receiving end of the nurse’s defensiveness.  The advocate’s name is Ken.  He has worked for more than 30 years as both a physician’s assistant and a nurse.  In a conversation with another nurse, one who works in an oncology infusion center, he told her his plans for establishing himself as a private patient advocate.  She reacted by telling him that there was no room for him in healthcare as an advocate. SHE is the patient advocate for her patients.

Without question, I’m sure she, like most nurses, is an advocate for her patients.  But that’s not the same — at all — as a private patient advocate or navigator.  The real parallel, perhaps, is a private duty nurse.  A private duty nurse is definitely a private patient advocate, too.

But that’s not what Ken’s nurse-friend is.  Here are some of the differences, and the reasons why there is room for both nurses and advocates when it comes time to help a patient:

1.  Nurses are provider or facility-bound.  That is, the patient comes and goes, but the nurse stays, connected to the provider or facility.  As long as the patient is inside the nurse’s (provider’s or facility’s) domain, then the nurse can be the patient’s advocate.  But there is plenty of need for an advocate outside that domain, too.

2. If every patient only ever had one medical need at a time, went to one doctor at a time, got all their tests at the doctor’s office, took one drug at a time, got one bill at a time for care, THEN a location-bound nurse might be all the help that patient would need. But these days, and in particular as baby-boomers continue to age, many patients do have more than one medical problem they deal with, take more than one or two kinds of drugs, are being treated or are getting therapy for additional problems, and have too many confusing bills…  Ken’s friend isn’t the advocate who can help them.  A private patient advocate is.

3.  Hospital nurses do a yoeman’s job, managing way too many patients, often with at least one arm tied behind their backs.  We have all heard stories about when a patient pushes the help button to get up and use the bathroom only to have to wait…. and wait…. and wait…. and wait.  We also hear about the wrong drugs being administered, or infections that could have been prevented…  A private bedside advocate who is focused only on his or her one patient can be a lifesaver.  Ken’s friend can’t do that either.

As healthcare continues to get more and more confusing, as safety problems don’t improve enough to guarantee safety in the hospital, as access becomes more difficult because healthcare reform introduces 32 million new Americans to the care system – patient advocates will continue to grow in numbers, need and stature.

So, nurses (and others who haven’t yet figured out the value of private professional patient advocates and navigators)… Please understand that patient advocates are not trying to get in your way, nor subtract from your domain.  Instead, they are there to focus on their patients when you can’t, and to facilitate the communication and collaboration between their patients and their patients’ providers.

There’s clearly a need.  There’s plenty of room for all.  Let’s work together with some better understanding that both nurses AND advocates play important roles in improving their patients’ quality of life.

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Categories: patient advocacy

Do I Have to Be a Nurse to Be a Patient Advocate?

November 14, 2010 4 comments
Categories: patient advocacy